Sometimes things are really hard with doing work with the Medical Advocacy Team. Important documents don't get delivered on time because of inclement weather... and paperwork doesn't get processed as fast as we hope because the Holiday's are next week... or people are on vacation from work... or perhaps emails go lost, unanswered, overlooked... and at times children wait far too long because just the sheer coordinating appropriate medical care for them from gazillions of miles away becomes overwhelming...
One of the hardest parts is that the people we work to help are people who are moving mountains in other countries, these folks are always over worked, unpaid or seriously under paid, sometimes under appreciated, almost always relied upon by MANY others and just plain BUSY people. For them to go one step further and help a child with disabilities that are far out of the scope of their resources- and sometimes their experience- is amazing. It's like carrying a ton of bricks and burdens and then asking for more to be put upon the pile already on their backs.
When things are tough...
we know we need to just keep forging ahead, living hope filled seconds where we spend a lot of time in prayer. What we are called to do for each child that crosses our path- is the best possible loving care that we can give them- the most commitment from the time we have- our very personal BEST- this doesn't mean that it always goes the way that it should/could or how we hoped it would. The visions in our minds often times remain naive and wishful for each and every child's happy ending.
Some of you might remember adorable Ruth-Nallie above, the tiny Haitian Princess. She passed away a few weeks ago, but while she was here on earth, she touched MANY lives. I was able to meet Ruth Nallie during a trip to Haiti and she was perhaps- the smallest and more adorable baby I had ever seen. When we first started to try to help "Nallie" and we posted her picture here on this blog, we created quite a following and people emailed to ask about her frequently.
Nallie was just that kind of sweet spirit whose life was a miracle. She did make it to the US and went through weeks upon weeks of hospital care... and was able to be with her family, and she continued to feel ongoing, supportive love as she had received for most of her life.
Sometimes it isn't the amount of time that a child has here that matters the most- its the quality of time they had while they were here. Its the level of love that they are shown, its the teamwork and commitment that everyone involved gives to that child and it screams to the world that this child was so worth it all... and perhaps- its the gift that we all recieve by being a part of their lives... however short sometimes they may be.